DonateIntersection of Palliative Care and Spiritual Care
Meet Amy Rak, a HPM fellowship trained physician who has been an attending for over a year at OhioHelath in Columbus. She rotates through a dedicated, free-standing inpatient hospice unit and also the consult service for a large community hospital
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Meet Michelle Bravenboer, a Chaplain originally in Community Aged Care specializing in Dementia. She is currently volunteering in a local correctional center as a chaplain’s assistant and is a trainer with a college training and assessing Chaplaincy Students across Australia and with Lifeline which is suicide prevention, domestic and family violence, mental health and a telephone crisis support 24/7 phone line, She is also a professional supervisor and support those in ministry and chaplaincy to stay strong, equipped and focused.
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Meet Dr. Mohammed Jamil Hossain, the chief Medical Officer at the Department of Health of South Africa. He received his degree in Palliative Care from the University of Cape Town and has 29 years experience in the field.
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Sandra Ulrich is a Spritual Care Entrepreneur who has been involved in fostering “Spiritual Care in Everyday Life and Work Life”. Her company actively participates in raising awareness for individuals who have had a difficult past.
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Patience Mbozi is a Palliative Care Nurse Specialist in Zambia with a BSc in Palliative Care from Makerere University, Uganda and an MSc in palliative care from Oxford Brookes University, United Kingdom (UK). She has been working at the Cancer Diseases Hospital in Lusaka, Zambia for a total of 11 years, but during the last six years she has been giving full time palliative care while heading the Palliative Care Unit at the same hospital.
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Diane Houston is a recently retired chaplain from Baylor Scott While Medical Center, Plano, Texas where she served patients and staff within a broad range of spiritual needs in this acute care facility. My years of service began with my Clinical Pastoral Education Spring 2000; I was board certified in 2005 and proceeded to work at Baylor Scott White in Dallas, Irving and Plano, TX until 2019.
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Maraliza de Haan is a qualified social worker who has been in the field palliative care for approximately 20 years. She started her career as a psychosocial manager at a hospice in South Africa and subsequently a national children’s palliative care coordinator at the Hospice Palliative Care Association. After moving to the Netherlands in 2012 she has been an international trainer of children’s palliative care health professionals. Her training topics include: communication with children and families facing a life-threatening/ limiting condition, family counseling, assessment, bereavement, and spiritual care.
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I was really touched by your profile .Am very interested in children palliative care how do I enroll for the course ?
Esther Taaka is a Palliative Care specialist who works at the Mbale Regional Referral Hospital in the Eastern part of Uganda, Africa She is responsible for several areas ranging from being in charge of a single hospital unit to being the regional palliative care coordinator for both the hospital and the region. Esther sits on multiple boards including the Palliative Care Advisory Committee for the Mbale region which advocates for palliative care policies in the country.
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Meet Margaret Naughton, a lay woman in her mid forties. She works as a Healthcare Chaplain in a small private hospital in Southern Ireland and is the current Chairperson of the National Association of Healthcare Chaplains (in Ireland).
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Meet Garth Battick a Spiritual Care Coordinator from Pinellas County, FL. where he takes care of the spiritual care needs of patients, family members, and staff. He has 5+ years FT hospice experience on top of four units of CPE.
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Meet Eric Markinson, a Chaplain at CC Young Senior Living in Dallas, TX. He has three years’ experience as a pastor and chaplain prior to his current position.
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Annie Whitlocke is a Buddhist chaplain and work as a Palliative Liaison Coordinator Buddhist at the Council of Victoria.She is also an Advance Care facilitator and an End of life advocate (death doula) in Melbourne, Australia and Victoria. She works in acute, palliative, and oncology areas of Monash Hospital as well as in the community.
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Costantino Fiore is a catholic healthcare chaplain in France (Lyon) since 2009. He has taken charge of the National Healthcare Chaplaincy Division at the French Bishop’s Conference.
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Svetlana Krichevsky worked as a Registered Nurse and hospice liaison for hospice companies in NJ. She is also a medical school graduate, beginning her internal medicine training.
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Rev. David Maginley, is a Lutheran pastor and staff chaplain at the QEII Health Sciences Centre, part of the Nova Scotia Health Authority in Canada. He covers palliative, cancer care and ICU.
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Ali Altaf, MD is a Medical Oncologist in Oman at Burjeel Hospital, a private tertiary care hospital with branches across the Gulf region. He the head of the oncology department and takes care of all its affairs.
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Kelly Arora Ph.D. is the Co-Director Interprofessional Graduate Certificate and Master of Science in Palliative Care as well as an Assistant Clinical Professor at the University of Colorado at the Anschutz Medical Campus and the John Wesley Iliff Senior Adjunct Lecturer in Spiritual Care.
where she provides program oversight and teaches spiritual care in an interprofessional graduate program in palliative care.
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Nicholas Collura is working as the first spiritual counselor at Tandigm Health, a health care start-up based in Conshohocken, PA, that supports Primary Care Physicians with resources to keep their patients well and out of the hospital.
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From: Matovu Lawrence
Subject: INSPIRING
Life is truly beyond the “i”
Regine Roche is an MD trained in anesthesiology, pain medicine, and palliative care and currently work at the Hospital of the State University of Haiti, Port-au-Prince.
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Joanna Thyer works as a multi-faith coordinator at a university, and as a coordinator of a pastoral program for People Living with HIV and Aids (PLWHA).
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Additional Offerings by Barry Ashpole
Following is a representative sample of articles, reports, etc., on hospice and palliative care in the prison environment noted over the past five years (2015-2020) in the weekly report Media Watch.
Although a universal public health issue, it is in the United States that most
interest and attention has been afforded the aging and the terminal ill prison population.
This backgrounder begins with twenty-plus articles by way of a broad overview of the issue, followed by additional articles, etc., (in descending order of publication) that offer a national and state-by state overview. This is followed by a short list of articles, etc., on end-of-life care in the prison systems in Canada, the U.K., France, Poland and Australia. Added is a list of additional, selected resources.
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Media Watch
Of particular interest in this week's issue of Media Watch (copy attached):
Black lives in a pandemic: Implications of systemic injustice for end‐of‐life care
Creating a resilient research program: Lessons learned from a palliative care research lab
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Of particular interest in this week's issue of Media Watch (copy attached):
Increasing advance care planning in the secondary care setting: A quality improvement project
A scoping research literature review to identify contemporary evidence on the incidence, causes, and impacts of end-of-life intra-family conflict
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Of particular interest in this week's issue of Media Watch (copy attached):
Integration of palliative care into COVID-19 pandemic planning
BMJ SUPPORTIVE & PALLIATIVE CARE | Online – 9 June 2020 – The COVID-19 pandemic is expected to surpass the healthcare system’s capacity to provide intensive care to all patients who deteriorate as a result of the disease. This poses a unique challenge to healthcare teams of rationing care during a pandemic when resources are scarce. Healthcare providers will need to acquire new skills in care decision making and effective symptom control for patients who do not receive life-saving measures. In this review, the authors describe some of the important palliative care (PC) considerations that need to be incorporated into COVID-19 pandemic planning. The main aspects to be considered include decision algorithms for rationing care, training on effective symptoms management, alternative delivery methods of PC services such as telemedicine and finally death and bereavement support for surviving family members who are likely to be isolated from their loved one at the moment of death. Full text: https://bit.ly/2YslIRp
Human touch via touchscreen: Rural nurses’ experiential perspectives on telehealth use in pediatric hospice care
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Of particular interest in this week's issue of Media Watch (copy attached):
A review and considerations on palliative care improvements for African Americans with cancer
Outcomes associated with a nurse-driven palliative care screening tool in the intensive care unit
COVID-19
Coronavirus changes how doctors deal with death
Worth Repeating
Palliating a pandemic: “All patients must be cared for”
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Of particular interest in this week's issue of Media Watch (copy attached):
A realist evaluation of a “single point of contact” end-of-life care service
Palliative care utilization among patients with COVID-19 in an underserved population: A single-center retrospective study
Global development of children's palliative care: The picture in 2017
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Of particular interest in this week's issue of Media Watch (copy attached):
Economics of palliative and end-of-life care
Equity and the financial costs of informal caregiving in palliative care: A critical debate
The healthcare cost of palliative care for cancer patients: A systematic review
Pediatric advance care planning
Congruence gaps between adolescents with cancer and their families regarding values, goals, and beliefs about end-of-life care
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Of particular interest in this week's issue of Media Watch (copy attached):
Lack of truth-telling in palliative care and its effects among nurses and nursing students
Improvements needed in palliative care services
In the lay-press
The pandemic is changing how we die – and not just for COVID-19 patients
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Of particular interest in this week's issue of Media Watch (copy attached):
Redefining palliative care: A new consensus-based definition
The more who die, the less we care: Confronting the deadly arithmetic of compassion
“Everybody in this community is at risk of dying.”: An ethnographic exploration on the potential of integrating a palliative approach to care among workers in inner-city settings
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Of particular interest in this week's issue of Media Watch (copy attached):
The community perspective on potentially inappropriate treatment
“A good death” during the COVID-19 pandemic in the U.K.: A report on key findings and recommendations
Hastened death due to disease burden and distress that has not received timely, quality palliative care is a medical error
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Of particular interest in this week's issue of Media Watch (copy attached):
Managing COVID-19 symptoms (including at the end of life) in the community: Summary of National Institute for Health & Care Excellence guidelines
Creating a seat at the table: How family meetings elucidate the palliative care social work role
Advances and challenges in European paediatric palliative care
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Of particular interest in this week's issue of Media Watch (copy attached):
Pandemic palliative care: Beyond ventilators and saving lives
The desire to die in palliative care: A sequential mixed methods study to develop a semi-structured clinical approach
Building a medical undergraduate palliative care curriculum: Lessons learned
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Of particular interest in this week's issue of Media Watch (copy attached):
COVID-19:
The role and response of palliative care and hospice services in epidemics and pandemics: A rapid review to inform practice during the COVID-19 pandemic
Palliative care and oncology:
The case for focused palliative care education in oncology training
Palliative care in long-term care:
Current issues with implementing a palliative approach in long-term care: Where do we go from here?
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Of particular interest in this week's issue of Media Watch (copy attached):
End-of-life care’s ongoing evolution
Palliative care skills and new resources for oncology practices: Meeting the palliative care needs of patients with cancer and their families
COVID-19: End-of-Life Care
Pandemic palliative care: Beyond ventilators and saving lives
In the lay press
It’s time to get serious about end-of-life care for high-risk Coronavirus patients
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This week's issue of Media Watch (copy attached) includes several articles, reports, etc., on COVID-19 from the lay press and specialist publications. Of particular interest:
Response and role of palliative care during the COVID-19 pandemic: A national telephone survey of hospices in Italy
End-of-life care in the emergency department for the patient imminently dying of a highly transmissible acute respiratory infection (such as COVID-19)
COVID-19: Professional Resources
The International Association for Hospice & Palliative Care has put together a list of resources relevant to palliative care and COVID-19, with links to websites and documents published by academia, civil society organizations, member states and special agencies of the United Nations. Download/view at: https://bit.ly/2QQ1q1t
N.B. In the issue of Media Watch dated 23 March 2020, a BBC News report mentioned that the U.K. Association for Palliative Medicine or Great Britain & Ireland was working on guidelines vis-à-vis palliative, end-of-life and bereavement care during the COVID-19 pandemic. Contact the Association for further information at: https://bit.ly/2UoMKHi
N.B. The current and back issues of Media Watch can be downloaded/viewed at: http://bit.ly/2ThijkC
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This week's issue of Media Watch (copy attached) includes several articles, reports, etc., from the lay press on COVID-19 from the perspective of end-of-life care, for example:
COVID-19: Doctors urge conversations about dying
Stringent control of opioids: Sound public health measures, but a step too far in palliative care?
Early impact of the 2014 World Health Assembly resolution on palliative care: A qualitative study using semi-structured interviews with key experts
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Of particular interest in this week's issue of Media Watch (copy attached):
The dying parent and dependent children: A nationwide survey of hospice and community palliative care support services
Palliative care advocacy: Why does it matter?
In the lay press
Fraser Health vs. the Delta Hospice Society: The usurpation of personal responsibility and…
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Of particular interest in this week's issue of Media Watch (copy attached):
Medicine’s collision with false hope: The false hope harms argument
Wish to die in older patients: Development and validation of two assessment instruments
Palliative care and the tragedy of the commons
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Of particular interest in this week's issue of Media Watch (copy attached):
Compassion fatigue, watching patients suffering and emotional display rules among hospice professionals: A daily diary study
Power and perils of prediction in palliative care
In the Lay Press
British Columbia cuts funding for hospice operator that won’t provide medically assisted death
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Of particular interest in this week's issue of Media Watch (copy attached):
End-of-life care in general practice: Clinic-based data collection
Physician Orders for Life-Sustaining Treatment and limiting overtreatment at the end of life
Bereaved families’ perspectives of end-of-life care. Towards a bicultural Whare Tapa Whā older person’s palliative care model
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Of particular interest in this week's issue of Media Watch (copy attached):
Evolving definitions of palliative care: Upstream migration or confusion?
Looking back, and ahead: A call to action for increasing the hospice and palliative medicine specialty pipeline
In the Lay Press
Medical aid in dying not driven by lack of access to palliative care: New study
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Of particular interest in this week's issue of Media Watch (copy attached):
International palliative care research priorities: A systematic review
The overlap between geriatric medicine and palliative care: A scoping literature review
Drivers of care costs and quality in the last 3 months of life among older people receiving palliative care: A multinational mortality follow-back survey across England, Ireland and the U.S.
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Of particular interest in this week's issue of Media Watch (copy attached):
Examination and analysis of after-hours calls in hospice
How cancer supportive and palliative care is developed: Comparing the policy-making process in three countries from three continents
In the Lay Press
“We must act now to save our hospices – or children will go without care”
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Of particular interest in this week's issue of Media Watch (copy attached):
Experiences with counselling to people who wish to be able to self-determine the timing and manner of one’s own end of life: A qualitative in-depth interview study
In the Lay Press
New Jersey legislation to expand hospice and palliative care
Publishing Matters
Do journals contribute to the international publication of research in their field? A bibliometric analysis of palliative care journal data
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Of particular interest in this week's issue of Media Watch (copy attached):
Palliative care for patients with substance use disorder and multiple problems: A qualitative study on experiences of healthcare professionals, volunteers and experts-by-experience
Mental healthcare and palliative care: Barriers
Bereavement support: From the poor cousin of palliative care to a core asset of compassionate communities
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Of particular interest in this week's issue of Media Watch (copy attached):
You’re in…but this service requires drug testing
Life, love, hope, faith, and death – too complex for Likert
Community participation in palliative care: Reflections from the ground
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Of particular interest in this week's issue of Media Watch (copy attached):
“It’s like a death sentence but it really isn’t.” What patients and families want to know about hospice care when making end-of-life decisions
The effect of early and systematic integration of palliative care in oncology on quality of life and health care use near the end of life: A randomised controlled trial
Meaningful deaths: Home health workers’ mediation of deaths at home
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Of particular interest in this week's issue of Media Watch (copy attached):
Screening with the double surprise question to predict deterioration and death: An explorative study
The relationship of palliative care with assisted dying where assisted dying is lawful: A systematic scoping review of the literature
The perception of barriers concerning opioid medicines: A survey examining differences between policy makers, healthcare professionals and other stakeholders
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