DonateAdditional Offerings by Barry Ashpole
Following is a representative sample of articles, reports, etc., on hospice and palliative care in the prison environment noted over the past five years (2014-2019) in the weekly report Media Watch.
Although a universal public health issue, it is in the United States that most
interest and attention has been afforded the aging and the terminal ill prison population.
This backgrounder begins with twenty-plus articles by way of a broad overview of the issue, followed by additional articles, etc., (in descending order of publication) that offer a national and state-by state overview. This is followed by a short list of articles, etc., on end-of-life care in the prison systems in Canada, the U.K., France, Poland and Australia. Added is a list of additional, selected resources.
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Of particular interest in this week's issue of Media Watch (copy attached):
Honoring the moral concerns of caregivers afraid of giving morphine
Palliative care after the Liverpool Care Pathway: A study of staff experiences
From the lay press
Cancer treatment at the end of life
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Of particular interest in this week's issue of Media Watch (copy attached):
Top ten tips palliative care clinicians should know about caring for patients in the emergency department
Those 5 stages of grief: Does mourning really unfold like that?
From the lay press
Why “Right-to-Try” created to help terminal patients hasn’t worked
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With this issue, Media Watch begins its 13th year of publication.
Of particular interest in this week's issue (copy attached):
Can a single question about family members’ sense of security during palliative care predict their well-being during bereavement? A longitudinal study during ongoing care and one year after the patient’s death
Understanding what works, why and in what circumstances in Hospice at Home Services for End-of-Life Care: Applying a realist logic of analysis to a systematically searched literature review
From the lay press
Working too hard for a good death: Has competitive dying become a thing?
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Of particular interest in this week's issue of Media Watch (copy attached):
Optimised clinical study recruitment in palliative care: Success strategies and lessons learned
Treatability statements in serious illness: The gap between what is said and what is heard
IAHPC’s response to a U.S. House of Representatives report and WHO’s reaction to it
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Of particular interest in this week's issue of Media Watch (copy attached):
How do hospital-based nurses and physicians identify the palliative phase in their patients and what difficulties exist? A qualitative interview study
End-of-life care for people with alcohol and drug problems: Findings from a Rapid Evidence Assessment
Evidence-based palliative care: How can we account for the messy world of practice?
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Of particular interest in this week's issue of Media Watch (copy attached):
“It could have been me”: An interpretive phenomenological analysis of healthcare providers’ experiences caring for adolescents and young adults with terminal cancer
Vlogging at the end of life
From the lay press
Charity succeeds in battle to ring-fence National Health Service funding for children’s hospices
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Of particular interest in this week's issue of Media Watch (copy attached):
Top ten tips palliative care clinicians should know about telepalliative care
The arc of generational care: A case series considering grandparent roles and care needs in pediatric palliative care
Establishing key criteria to define and compare models of specialist palliative care: A mixed-methods study using qualitative interviews and Delphi survey
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Of particular interest in this week's issue of Media Watch (copy attached):
Do we know what we mean? An examination of the use of the phrase “goals of care” in the literature
How and how much is spirituality discussed in palliative care consultations for advanced cancer patients with and without a question prompt list?
From the lay press
Children’s hospices “to shut if National Health Surface does not increase funding”
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Of particular interest in this week's issue of Media Watch (copy attached):
Organizing psychologists, behavioral scientists, and allied professionals: Formation of the Society of Behavioral Medicine’s Palliative Care Special Interest Group
Virtual reality: Endless potential in pediatric palliative care
Which outcome domains are important in palliative care and when? An international expert consensus workshop, using the nominal group technique
Publishing Matters
The association between quality measures of medical university press releases and their corresponding news stories. Important information missing
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Of particular interest in this week's issue of Media Watch (copy attached):
Life Café. A co-designed method of engagement
That was then, this is now: Using palliative care principles to guide opioid prescribing
Hospice philosophy in practice: Toward an authentic death
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Of particular interest in this week's issue of Media Watch (copy attached):
Impact of informational and relational continuity for people with palliative care needs: A mixed methods rapid review
When and how to use data from randomised trials to develop or validate prognostic models
Implementation of a clinical pharmacist service in the hospice setting: Financial and clinical impacts
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Of particular interest in this week's issue of Media Watch (copy attached):
Can artificial intelligence predict the end of Life … and do we really want to know?
Global palliative care: From need to action
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Of particular interest in this week's issue of Media Watch (copy attached):
Doctors’ perceptions of how resource limitations relate to futility in end-of-life decision making: A qualitative analysis
Identifying palliative care champions to promote high‐quality care to those with serious illness
A survey of hospice professionals regarding medical cannabis practices
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Of particular interest in this week's issue of Media Watch (copy attached):
Goals‐of‐care discussions for adult patients nearing end of life in emergency departments: A systematic review
Compassionate use of unauthorized drugs: Legal regulations and ethical challenges
Awareness of palliative care among a nationally representative sample of U.S. adults
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Of particular interest in this week's issue of Media Watch (copy attached):
The right to grieve
Perspectives on volunteer-professional collaboration in palliative care: A qualitative study among volunteers, patients, family carers and healthcare professionals
Special Issue on medical cannabis use in palliative care
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Attached is this week's issue (#610):
Of particular interest:
Supporting families involved in court cases about life‐sustaining treatment: Working as academics, advocates and activists
Better guidance for surrogates
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Attached is this week's issue (#610):
Of particular interest:
Feeling like a burden to others and the wish to hasten death in patients with advanced illness: A systematic review
Elisabeth Kübler-Ross and the “five stages” model in a sampling of recent textbooks published in 10 countries outside the U.S
What do family caregivers know about palliative care? Results from a national survey [in the U.S.]
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Attached is this week's issue (#609).
Of particular interest:
Compelling results that a problem‐solving intervention improves hospice family caregiver outcomes
The myth of “no place like home” when it comes to end of life
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Attached is this week's issue (#608).
Of particular interest:
Preventive drugs in the last year of life of older adults with cancer: Is there room for deprescribing?
Appropriate frameworks for economic evaluation of end-of-life care: A qualitative investigation with stakeholders
Patient-provider care goal concordance: Implications for palliative care decisions
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Attached is this week's issue (#607).
Of particular interest:
Withholding and withdrawing life-sustaining treatment: Ethically equivalent?
The limits of “life-limiting”
Publishing Matters
Making and measuring an impact in a digital world: The role of social media and the medical journal
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Attached is this week's issue (#606).
Of particular interest:
How to talk about attitudes toward the end of life: A qualitative study
Let’s talk with children about life-threatening diseases
“So isolation comes in, discrimination and you find many people dying quietly without any family support”: Accessing palliative care for key populations – an in-depth qualitative study
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Attached is this week's issue (#605).
Of particular interest:
Helping the demand find the supply: Messaging the value of specialty palliative care directly to those with serious illnesses
Do mention the D word
The deteriorating patient representative on a palliative care quality committee: Ethical and practical considerations
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Attached is the current issue of Media Watch (#604).
Of particular interest:
The ethics of prioritizing access to palliative care: A qualitative study
Changing perceptions is more important than changing names
Patients’ views on care and their association with outcomes in palliative care
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Attached is the current issue of Media Watch (#603).
Of particular interest:
Serious choices: A systematic environmental scan of decision aids and their use for seriously ill people near death
Palliative care and public health: An asymmetrical relationship?
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Attached is the current issue of Media Watch (#602).
Of particular interest:
Breaking silence: A survey of barriers to goals-of-care discussions from the perspective of oncology practitioners
A practical approach to assessing and mitigating loneliness and isolation in older adults
Has the National Health Service Long Term Plan forgotten we are all going to die?
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Attached is the current issue of Media Watch (#601).
Of particular interest:
The ageing and deinstitutionalisation of death: Evidence from England and Wales
Emergency department-based palliative interventions: A novel approach to palliative care in the emergency department
Representations of palliative care, euthanasia and assisted dying within advocacy declarations
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Attached is the current issue of Media Watch (#600).
Of particular interest:
Unpacking “the cloud”: A framework for implementing public health approaches to palliative care
Cancer and opioids: Patient Experiences with Stigma (COPES)
The clinical evaluation of the wish to hasten death is not upsetting for advanced cancer patients: A cross-sectional study
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Attached is the current issue of Media Watch (#599).
Of particular interest:
Public policy: An analgesia for opioid diversion
Can Death Cafés resuscitate morale in hospitals?
Early palliative care: Pro, but please be precise!
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Attached is the current issue of Media Watch (#598).
Of particular interest:
“This condition isn’t going to get any better so I can’t see why we’re prolonging it”: Risks and benefits of using empirical research to inform normative decisions concerning end-of-life care
Top ten tips palliative care clinicians should know about medical cannabis
Reducing the role of the courts in treatment withdrawal
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Attached is the current issue of Media Watch (#597).
Of particular interest:
New definition of palliative care
Spiritual uncertainty among hospice providers – “there were tensions”
Understanding the barriers to introducing early palliative care for patients with advanced cancer: A qualitative study
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Attached is the current issue of Media Watch (#596).
Of particular interest:
Visualizing end-of-life care
Caring for dying patients: Visual narratives from the intensive care unit
What does the word “treatable” mean? Implications for communication and decision-making in critical illness
Predatory open-access publishing in palliative and supportive care
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