Intersection of Spiritual Care and Palliative Care: Meet Ibrahim Long 1.67 MB

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Ibrahim Long is a Muslim spiritual care provider (chaplain).  His educational trajectory has primarily been within religious studies with an increasing focus on counseling and mental health. He transitioned into the role of a chaplain while attending the first accredited graduate program in Islamic Chaplaincy at the Hartford Seminary.

He has served for over a decade in healthcare, correctional, and post-secondary settings.  Until recently, he also served as a part-time clinical chaplain at two local hospitals here in Edmonton. Long occasionally volunteers in some clinical work. However, my professional focus has primarily shifted to serving youth and young adults.

Intersection of Spiritual Care and Palliative Care: Meet Juliet Sternberg 2.45 MB

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Juliet Sternberg is a hospice social worker for Calvary@home in Brooklyn, NY where she is responsible for visiting on average 30 Patients and families under Calvary care in their homes in Brooklyn until the person dies and then conduct short term follow up with their family. She has been in the Social Work profession since 1992 and has social work experience in geriatric case management with isolated elders; veterinary SW with families caring for their pets at end of life (palliative care program) and following the families after the loss; training and supervising volunteers for program serving isolated people at end of life.

Intersection of Spiritual Care and Palliative Care: Meet Rosana Mainar Sancho 2.89 MB

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Rosana Mainar Sancho is a Geriatrician and a Family Doctor who has a Master’s Degree in Palliative Care and a Master’s Degree in Integrative Medicine. She works in Madrid (Spain) in the Public Health System and also in her  private medical practice where she treats patients who need palliative care.

Intersection of Spiritual Care and Palliative Care: Meet Vilbert Vallance 464.98 KB

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Meet Vilbert Vallance, a chaplain serving at the Bangalore Baptist Hospital in India for the past 10 years.

Intersection of Spiritual Care and Palliative Care: Meet Sankha Mitra 454.00 KB

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Meet Professor Sankha Mitra the the Clinical Director of Rural Support Service Country Health in Adelaide, Australia and a Consultant Medical Oncologist with the FUN network.

He is also the Chairman of the Board of Trustees of Eastern India Palliative Care, a non-for-profit Trust delivering free Palliative Care services in Eastern India.

Intersection of Spiritual Care and Palliative Care: Meet Joachim Habbe 508.98 KB

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Meet Joachim Habbe, a Protestant parish priest who is assigned to provide pastoral care at the catholic hospice Xenia in Nuremberg, Germany.  He has been working there since 1998, with a two-year interruption. During this time, he set up pastoral care in the palliative care unit at the University Hospital Würzburg.

Intersection of Spiritual Care and Palliative Care: Meet Amy Rak 447.46 KB

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Meet Amy Rak, a HPM fellowship trained physician who has been an attending for over a year at OhioHelath in Columbus.  She rotates through a dedicated, free-standing inpatient hospice unit and also  the consult service for a large community hospital

Intersection of Spiritual Care and Palliative Care: Meet Michelle Bravenboer 480.03 KB

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Meet Michelle Bravenboer, a Chaplain originally in Community Aged Care specializing in Dementia.  She is currently volunteering in a local correctional center as a chaplain’s assistant and is a trainer with a college training and assessing Chaplaincy Students across Australia and with Lifeline which is suicide prevention, domestic and family violence, mental health and a telephone crisis support 24/7 phone line, She is also a professional supervisor and support those in ministry and chaplaincy to stay strong, equipped and focused.

Intersection of Spiritual Care and Palliative Care: Meet Mohammed Jamil Hossain 20.00 KB

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Meet Dr. Mohammed Jamil Hossain, the chief Medical Officer at the Department of Health of South Africa.  He received his degree in Palliative Care from the University of Cape Town and has 29 years experience in the field.

Intersection of Spiritual Care and Palliative Care: Meet Sandra Ulrich 507.22 KB

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Sandra Ulrich is a Spritual Care Entrepreneur who has been involved in fostering “Spiritual Care in Everyday Life and Work Life”. Her company actively participates in raising awareness for individuals who have had a difficult past.

Intersection of Spiritual Care and Palliative Care: Meet Patience Mbozi 446.15 KB

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Patience Mbozi is a Palliative Care Nurse Specialist in Zambia with a BSc in Palliative Care from Makerere University, Uganda and an MSc in palliative care from Oxford Brookes University, United Kingdom (UK).   She has been working at the Cancer Diseases Hospital in Lusaka, Zambia for a total of 11 years,  but during the last six years she has been giving full time palliative care while heading the Palliative Care Unit at the same hospital.

Intersection of Spiritual Care and Palliative Care: Meet Diane Houston 242.98 KB

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Diane Houston is a recently retired chaplain from Baylor Scott While Medical Center, Plano, Texas where she served patients and staff within a broad range of spiritual needs in this acute care facility. My years of service began with my Clinical Pastoral Education Spring 2000; I was board certified in 2005 and proceeded to work at Baylor Scott White in Dallas, Irving and Plano, TX until 2019.

Intersection of Spiritual Care and Palliative Care: Meet Maraliza de Haan 462.31 KB

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Maraliza de Haan is a qualified social worker who has been in the field palliative care for approximately 20 years. She started her career as a psychosocial manager at a hospice in South Africa and subsequently a national children’s palliative care coordinator at the Hospice Palliative Care Association. After moving to the Netherlands in 2012 she has been an international trainer of children’s palliative care health professionals. Her training topics include: communication with children and families facing a life-threatening/ limiting condition, family counseling, assessment, bereavement, and spiritual care.

Intersection of Spiritual Care and Palliative Care: Meet Esther Taaka 559.16 KB

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Esther Taaka is a Palliative Care specialist who works at the Mbale Regional Referral Hospital in the Eastern part of Uganda, Africa She is responsible for several areas ranging from being in charge of a single hospital unit to being the regional palliative care coordinator for both the hospital and the region. Esther sits on multiple boards including the Palliative Care Advisory Committee for the Mbale region which advocates for palliative care policies in the country.

Intersection of Spiritual Care and Palliative Care: Meet Margaret Naughton 509.32 KB

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Meet Margaret Naughton, a lay woman in her mid forties.  She works as a Healthcare Chaplain in a small private hospital in Southern Ireland and is the current Chairperson of the National Association of Healthcare Chaplains (in Ireland).

Intersection of Spiritual Care and Palliative Care: Meet Garth Battick 474.89 KB

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Meet Garth Battick a Spiritual Care Coordinator from Pinellas County, FL. where he takes care of the spiritual care needs of patients, family members, and staff. He has 5+ years FT hospice experience on top of four units of CPE.

Intersection of Spiritual Care and Palliative Care: Meet Eric Markinson 460.17 KB

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Meet Eric Markinson, a Chaplain at CC Young Senior Living in Dallas, TX.  He has three years’ experience as a pastor and chaplain prior to his current position.

Intersection of Spiritual Care and Palliative Care - Meet Annie Whitlocke 487.92 KB

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Annie Whitlocke is a Buddhist chaplain and work as a Palliative Liaison Coordinator Buddhist at the Council of Victoria.She is  also an Advance Care facilitator and an End of life advocate (death doula) in Melbourne, Australia and Victoria. She works in acute, palliative, and oncology areas of Monash Hospital as well as in the community.

Intersection of Spiritual Care and Palliative Care - Meet Costantino Fiore, Chaplain 485.07 KB

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Costantino Fiore is a catholic healthcare chaplain in France (Lyon) since 2009. He has taken charge of the National Healthcare Chaplaincy Division at the French Bishop’s Conference.

Intersection of Spiritual Care and Palliative Care - Meet Svetlana Krichevsky, Resident Physician 474.86 KB

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Svetlana Krichevsky worked as a Registered Nurse and hospice liaison for hospice companies in NJ. She is also a medical school graduate, beginning her internal medicine training.

Intersection of Spiritual Care and Palliative Care - Meet Rev. David Maginley 347.49 KB

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Rev. David Maginley, is a Lutheran pastor and staff chaplain at the QEII Health Sciences Centre, part of the Nova Scotia Health Authority in Canada. He covers palliative, cancer care and ICU.

Intersection of Spiritual Care and Palliative Care - Meet Ali Altaf, MD 334.74 KB

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Ali Altaf, MD is a Medical Oncologist in Oman at Burjeel Hospital, a private tertiary care hospital with branches across the Gulf region. He the head of the oncology department and takes care of all its affairs.

Intersection of Spiritual Care and Palliative Care - Meet Kelly Arora Ph.D. 334.72 KB

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Kelly Arora Ph.D. is the Co-Director Interprofessional Graduate Certificate and Master of Science in Palliative Care as well as an Assistant Clinical Professor at the University of Colorado at the Anschutz Medical Campus and the John Wesley Iliff Senior Adjunct Lecturer in Spiritual Care.
where she provides program oversight and teaches spiritual care in an interprofessional graduate program in palliative care.

Intersection of Spiritual Care and Palliative Care - Meet Nicholas Collura, MDiv 478.30 KB

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Nicholas Collura is working as the first spiritual counselor at Tandigm Health, a health care start-up based in Conshohocken, PA, that supports Primary Care Physicians with resources to keep their patients well and out of the hospital.

Intersection of Spiritual Care and Palliative Care - Meet Regine Roche, MD 468.04 KB

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Regine Roche is an MD trained in anesthesiology, pain medicine, and palliative care and currently work at the Hospital of the State University of Haiti, Port-au-Prince.

Intersection of Spiritual Care and Palliative Care - Meet Joanna Thyer, Chaplain & Writer 459.77 KB

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Joanna Thyer works as a multi-faith coordinator at a university, and as a coordinator of a pastoral program for People Living with HIV and Aids (PLWHA).

End of Life Care in the Prison Environment: Updated September 15, 2020 373.14 KB

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Following is a representative sample of articles, reports, etc., on hospice and palliative care in the prison environment noted over the past five years (2015-2020) in the weekly report  Media Watch.

Although a universal public health issue, it is in the United States that most
interest and attention has been afforded the aging and the terminal ill prison population.

This backgrounder begins with twenty-plus articles by way of a broad overview of the issue, followed by additional articles, etc., (in descending order of publication) that offer a national and state-by state overview. This is followed by a short list of articles, etc., on end-of-life care in the prison systems in Canada, the U.K., France, Poland and Australia. Added is a list of additional, selected resources.

Media Watch 684 562.33 KB

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Of particular interest in this week's issue of Media Watch (copy attached):

Belgium

Are family carers part of the care team providing end-of-life care? A qualitative interview study on the collaboration between family and professional carers

Workforce planning for community-based palliative care specialist teams using operations research

Media Watch 683 677.29 KB

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U.K.

Managing and sharing research data in children’s palliative care: Risks, benefits and imponderables

Patient and public involvement in palliative care research: What works, and why? A qualitative evaluation

In the Lay Press

In pandemic era, the term palliative care is even more scary for some. So specialists want to rename it.

Media Watch 682 533.28 KB

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Of particular interest in this week's issue of Media Watch (copy attached):

Belgium

Palliative care utilisation: Family carers’ behaviours and determinants: A qualitative interview study

Italy

How palliative care professionals deal with predicting life expectancy at the end of life: Predictors and accuracy

U.S.

Will you hear me? Have you heard me? Do you see me? Adding cultural humility to resource allocation and priority setting discussions in the care of African American patients with COVID-19

Media Watch 681 555.97 KB

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From the field of pediatric palliative care, and of particular interest in this week's issue of Media Watch (copy attached):

Canada

Serious illness conversations in pediatrics: A case review

U.S.

Pediatric palliative care when COVID-19 positive adults are dying in a children’s hospital

Diagnosis to death: Family experiences of paediatric heart disease

Media Watch 680 516.16 KB

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Of particular interest in this week's issue of Media Watch (copy attached):

Canada

What are we willing to pay for the quality of death we want?

New Zealand

Palliative care delivery in residential aged care: Bereaved family member experiences of the Supportive Hospice Aged Residential Exchange (SHARE) intervention

Sweden

Toward a consensus on the nature of empathy: A review of reviews

Media Watch 679 481.15 KB

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Of particular interest in this week's issue of Media Watch (copy attached):

Exploring the cost‐effectiveness of advance care planning (by taking a family carer perspective): Findings of an economic modelling study

COVID-19 and hospital palliative care: A service evaluation exploring the symptoms and outcomes of 186 patients and the impact of the pandemic on specialist hospital palliative care

Grief from Covid-19 death: Toll on bereaved family members runs deep, study says

Media Watch 678 857.12 KB

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Of particular interest in this week's issue of Media Watch (copy attached):

Barriers and facilitators to optimal supportive end-of-life palliative care in long-term care facilities: A qualitative descriptive study of community-based and specialist palliative care physicians’ experiences, perceptions and perspectives

Palliative care needs-assessment and measurement tools used in patients with heart failure: A systematic mixed-studies review with narrative synthesis

MVP (Medical situation, Values & Plan): A memorable and useful model for all serious illness conversations

Media Watch 677 466.63 KB

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Of particular interest in this week's issue of Media Watch (copy attached):

Advance care planning vs. advance serious illness preparations and planning

We will all be changed: Palliative care transformation in the time of COVID-19

Social justice and palliative care policy

Media Watch 676 501.52 KB

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Of particular interest in this week's issue of Media Watch (copy attached):

“Palliative pandemic plan”: Triage and symptoms algorithm as a strategy to decrease providers’ exposure, while trying to increase teams availability and guidance for goals of care and symptoms control

Teach me about death

Media Watch 675 447.18 KB

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Of particular interest in this week's issue of Media Watch (copy attached):

A pilot evaluation of the Strengthening a Palliative Approach in Long-Term Care (SPA-LTC) program

Children’s views are not taken into account in accordance with Article 12 of the United Nations Convention on the Rights of the Child in the Family Talk Intervention when a parent is cared for in palliative care

Media Watch 674 498.59 KB

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Of particular interest in this week's issue of Media Watch (copy attached):

What is a good death? A critical discourse policy analysis

Experience of caregivers supporting a patient through voluntarily stopping eating and drinking

The Compassionate Communities Connectors model for end-of-life care: A community and health service partnership in Western Australia

Media Watch 673 436.80 KB

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Of particular interest in this week's issue of Media Watch (copy attached):

Black lives in a pandemic: Implications of systemic injustice for end‐of‐life care

Creating a resilient research program: Lessons learned from a palliative care research lab

Media Watch 671 443.08 KB

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Of particular interest in this week's issue of Media Watch (copy attached):

Increasing advance care planning in the secondary care setting: A quality improvement project

A scoping research literature review to identify contemporary evidence on the incidence, causes, and impacts of end-of-life intra-family conflict

Media Watch 670 485.81 KB

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Of particular interest in this week's issue of Media Watch (copy attached):

Integration of palliative care into COVID-19 pandemic planning

BMJ SUPPORTIVE & PALLIATIVE CARE | Online – 9 June 2020 – The COVID-19 pandemic is expected to surpass the healthcare system’s capacity to provide intensive care to all patients who deteriorate as a result of the disease. This poses a unique challenge to healthcare teams of rationing care during a pandemic when resources are scarce. Healthcare providers will need to acquire new skills in care decision making and effective symptom control for patients who do not receive life-saving measures. In this review, the authors describe some of the important palliative care (PC) considerations that need to be incorporated into COVID-19 pandemic planning. The main aspects to be considered include decision algorithms for rationing care, training on effective symptoms management, alternative delivery methods of PC services such as telemedicine and finally death and bereavement support for surviving family members who are likely to be isolated from their loved one at the moment of death. Full text: https://bit.ly/2YslIRp

Human touch via touchscreen: Rural nurses’ experiential perspectives on telehealth use in pediatric hospice care

Media Watch 669 518.09 KB

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Of particular interest in this week's issue of Media Watch (copy attached):

A review and considerations on palliative care improvements for African Americans with cancer

Outcomes associated with a nurse-driven palliative care screening tool in the intensive care unit

COVID-19

Coronavirus changes how doctors deal with death

Worth Repeating

Palliating a pandemic: “All patients must be cared for”

Media Watch 668 478.25 KB

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Of particular interest in this week's issue of Media Watch (copy attached):

A realist evaluation of a “single point of contact” end-of-life care service

Palliative care utilization among patients with COVID-19 in an underserved population: A single-center retrospective study

Global development of children's palliative care: The picture in 2017

Media Watch 667 494.56 KB

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Of particular interest in this week's issue of Media Watch (copy attached):

Economics of palliative and end-of-life care

Equity and the financial costs of informal caregiving in palliative care: A critical debate

The healthcare cost of palliative care for cancer patients: A systematic review

Pediatric advance care planning

Congruence gaps between adolescents with cancer and their families regarding values, goals, and beliefs about end-of-life care

Media Watch 666 663.28 KB

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Of particular interest in this week's issue of Media Watch (copy attached):

Lack of truth-telling in palliative care and its effects among nurses and nursing students

Improvements needed in palliative care services

In the lay-press

The pandemic is changing how we die – and not just for COVID-19 patients

Media Watch 665 626.29 KB

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Of particular interest in this week's issue of Media Watch (copy attached):

Redefining palliative care: A new consensus-based definition

The more who die, the less we care: Confronting the deadly arithmetic of compassion

“Everybody in this community is at risk of dying.”: An ethnographic exploration on the potential of integrating a palliative approach to care among workers in inner-city settings

Media Watch 664 516.87 KB

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Of particular interest in this week's issue of Media Watch (copy attached):

The community perspective on potentially inappropriate treatment

“A good death” during the COVID-19 pandemic in the U.K.: A report on key findings and recommendations

Hastened death due to disease burden and distress that has not received timely, quality palliative care is a medical error

Media Watch 663 668.78 KB

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Of particular interest in this week's issue of Media Watch (copy attached):

Managing COVID-19 symptoms (including at the end of life) in the community: Summary of National Institute for Health & Care Excellence guidelines

Creating a seat at the table: How family meetings elucidate the palliative care social work role

Advances and challenges in European paediatric palliative care

Media Watch 662 601.40 KB

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Of particular interest in this week's issue of Media Watch (copy attached):

Pandemic palliative care: Beyond ventilators and saving lives

The desire to die in palliative care: A sequential mixed methods study to develop a semi-structured clinical approach

Building a medical undergraduate palliative care curriculum: Lessons learned

Media Watch 661 452.03 KB

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Of particular interest in this week's issue of Media Watch (copy attached):

COVID-19:

The role and response of palliative care and hospice services in epidemics and pandemics: A rapid review to inform practice during the COVID-19 pandemic

Palliative care and oncology:

The case for focused palliative care education in oncology training

Palliative care in long-term care:

Current issues with implementing a palliative approach in long-term care: Where do we go from here?

Media Watch 660 598.29 KB

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Of particular interest in this week's issue of Media Watch (copy attached):

End-of-life care’s ongoing evolution

Palliative care skills and new resources for oncology practices: Meeting the palliative care needs of patients with cancer and their families

COVID-19: End-of-Life Care

Pandemic palliative care: Beyond ventilators and saving lives

In the lay press

It’s time to get serious about end-of-life care for high-risk Coronavirus patients