DonateIntersection of Palliative Care and Spiritual Care
Meet Dr. Mari Joanne G. Joson, Head of Integrative Palliative and Home Care of Makati Medical Center, Makati City, Philippines. Her scope of service includes outpatient, inpatient, and home care referrals. She caters to pediatric and adult patients. The Makati Medical Center has a wing where hospice and palliative patients are admitted for supportive care and a chaplain in the hospital takes care of some spiritual services requested by the patients.
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Meet Moni G., an associate Chaplain and team leader in a local Aged Care Home in Coffs Harbour, NSW, Australia. She works in an organization that recognizes the importance of a holistic care approach and endorses the ongoing spiritual care input offered through her team.
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Meet Joris de Lange, a spiritual care provider for Zuyderland Care in the South of the Netherlands. His main focus for the last four years has been spiritual care in palliative care and training general caregivers on this subject.
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Rev. Scott Rash is the house chaplain for Liberty Hospital Home Health and Hospice in Liberty, MO. I have worked for Liberty Hospital for 5 years. His present job gives him the best of multiple worlds as he engages with patients, family members, and clinical staff both in the hospital and the community at large.
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Mohammad Hidayatulla is an Associate Consultant for Palliative Medicine at King Faisal Specialist Hospital and Research Center, Saudi Arabia. He has been working at this 1200 bed multispecialty hospital for 25 years. The Palliative Care section is the oldest program in the region. He also started the first Palliative Care Program at Tawam Hospital in the United Arab Emirates.
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Pamela Bagatella is a nurse with a postgraduate certificate in palliative care. She works in a long-time care home for the elderly in the French part of Switzerland where she is responsible for palliative care for the whole institution.
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John Purrsey works in the Inpatient Unit at Byron Central Hospital, Byron Bay, New South Wales, Australia.
After retirement he undertook a Certificate in Spiritual Care followed by a Diploma in Chaplaincy. He provides spiritual care under NSW Health & Civil Chaplaincies Advisory Committee NSW.
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Christina Kayales is a Chaplain, spiritual care provider, and cross cultural counseling from Hamburg, Germany. She is a Lutheran pastor educated in pastoral psychology and psychotherapy and has been working as a hospital chaplain in a multicultural area of Hamburg. She lectures on cross cultural counseling.
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Folasu Olusegun Oyebola is a Consultant in Pain and Palliative Medicine. He works as the Head of Pain and Palliative Medicine of the Federal Medical Center in Abeokuta, Nigeria. He started practicing Palliative Medicine in 2001 but has been practicing pain management since 1993.
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Ibrahim Long is a Muslim spiritual care provider (chaplain). His educational trajectory has primarily been within religious studies with an increasing focus on counseling and mental health. He transitioned into the role of a chaplain while attending the first accredited graduate program in Islamic Chaplaincy at the Hartford Seminary.
He has served for over a decade in healthcare, correctional, and post-secondary settings. Until recently, he also served as a part-time clinical chaplain at two local hospitals here in Edmonton. Long occasionally volunteers in some clinical work. However, my professional focus has primarily shifted to serving youth and young adults.
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Juliet Sternberg is a hospice social worker for Calvary@home in Brooklyn, NY where she is responsible for visiting on average 30 Patients and families under Calvary care in their homes in Brooklyn until the person dies and then conduct short term follow up with their family. She has been in the Social Work profession since 1992 and has social work experience in geriatric case management with isolated elders; veterinary SW with families caring for their pets at end of life (palliative care program) and following the families after the loss; training and supervising volunteers for program serving isolated people at end of life.
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Rosana Mainar Sancho is a Geriatrician and a Family Doctor who has a Master’s Degree in Palliative Care and a Master’s Degree in Integrative Medicine. She works in Madrid (Spain) in the Public Health System and also in her private medical practice where she treats patients who need palliative care.
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Meet Vilbert Vallance, a chaplain serving at the Bangalore Baptist Hospital in India for the past 10 years.
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Meet Professor Sankha Mitra the the Clinical Director of Rural Support Service Country Health in Adelaide, Australia and a Consultant Medical Oncologist with the FUN network.
He is also the Chairman of the Board of Trustees of Eastern India Palliative Care, a non-for-profit Trust delivering free Palliative Care services in Eastern India.
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Meet Joachim Habbe, a Protestant parish priest who is assigned to provide pastoral care at the catholic hospice Xenia in Nuremberg, Germany. He has been working there since 1998, with a two-year interruption. During this time, he set up pastoral care in the palliative care unit at the University Hospital Würzburg.
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Meet Amy Rak, a HPM fellowship trained physician who has been an attending for over a year at OhioHelath in Columbus. She rotates through a dedicated, free-standing inpatient hospice unit and also the consult service for a large community hospital
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Meet Michelle Bravenboer, a Chaplain originally in Community Aged Care specializing in Dementia. She is currently volunteering in a local correctional center as a chaplain’s assistant and is a trainer with a college training and assessing Chaplaincy Students across Australia and with Lifeline which is suicide prevention, domestic and family violence, mental health and a telephone crisis support 24/7 phone line, She is also a professional supervisor and support those in ministry and chaplaincy to stay strong, equipped and focused.
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Meet Dr. Mohammed Jamil Hossain, the chief Medical Officer at the Department of Health of South Africa. He received his degree in Palliative Care from the University of Cape Town and has 29 years experience in the field.
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Sandra Ulrich is a Spritual Care Entrepreneur who has been involved in fostering “Spiritual Care in Everyday Life and Work Life”. Her company actively participates in raising awareness for individuals who have had a difficult past.
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Patience Mbozi is a Palliative Care Nurse Specialist in Zambia with a BSc in Palliative Care from Makerere University, Uganda and an MSc in palliative care from Oxford Brookes University, United Kingdom (UK). She has been working at the Cancer Diseases Hospital in Lusaka, Zambia for a total of 11 years, but during the last six years she has been giving full time palliative care while heading the Palliative Care Unit at the same hospital.
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Diane Houston is a recently retired chaplain from Baylor Scott While Medical Center, Plano, Texas where she served patients and staff within a broad range of spiritual needs in this acute care facility. My years of service began with my Clinical Pastoral Education Spring 2000; I was board certified in 2005 and proceeded to work at Baylor Scott White in Dallas, Irving and Plano, TX until 2019.
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Maraliza de Haan is a qualified social worker who has been in the field palliative care for approximately 20 years. She started her career as a psychosocial manager at a hospice in South Africa and subsequently a national children’s palliative care coordinator at the Hospice Palliative Care Association. After moving to the Netherlands in 2012 she has been an international trainer of children’s palliative care health professionals. Her training topics include: communication with children and families facing a life-threatening/ limiting condition, family counseling, assessment, bereavement, and spiritual care.
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I was really touched by your profile .Am very interested in children palliative care how do I enroll for the course ?
Esther Taaka is a Palliative Care specialist who works at the Mbale Regional Referral Hospital in the Eastern part of Uganda, Africa She is responsible for several areas ranging from being in charge of a single hospital unit to being the regional palliative care coordinator for both the hospital and the region. Esther sits on multiple boards including the Palliative Care Advisory Committee for the Mbale region which advocates for palliative care policies in the country.
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Meet Margaret Naughton, a lay woman in her mid forties. She works as a Healthcare Chaplain in a small private hospital in Southern Ireland and is the current Chairperson of the National Association of Healthcare Chaplains (in Ireland).
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Meet Garth Battick a Spiritual Care Coordinator from Pinellas County, FL. where he takes care of the spiritual care needs of patients, family members, and staff. He has 5+ years FT hospice experience on top of four units of CPE.
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Meet Eric Markinson, a Chaplain at CC Young Senior Living in Dallas, TX. He has three years’ experience as a pastor and chaplain prior to his current position.
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Annie Whitlocke is a Buddhist chaplain and work as a Palliative Liaison Coordinator Buddhist at the Council of Victoria.She is also an Advance Care facilitator and an End of life advocate (death doula) in Melbourne, Australia and Victoria. She works in acute, palliative, and oncology areas of Monash Hospital as well as in the community.
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Costantino Fiore is a catholic healthcare chaplain in France (Lyon) since 2009. He has taken charge of the National Healthcare Chaplaincy Division at the French Bishop’s Conference.
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Svetlana Krichevsky worked as a Registered Nurse and hospice liaison for hospice companies in NJ. She is also a medical school graduate, beginning her internal medicine training.
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Rev. David Maginley, is a Lutheran pastor and staff chaplain at the QEII Health Sciences Centre, part of the Nova Scotia Health Authority in Canada. He covers palliative, cancer care and ICU.
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Ali Altaf, MD is a Medical Oncologist in Oman at Burjeel Hospital, a private tertiary care hospital with branches across the Gulf region. He the head of the oncology department and takes care of all its affairs.
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Kelly Arora Ph.D. is the Co-Director Interprofessional Graduate Certificate and Master of Science in Palliative Care as well as an Assistant Clinical Professor at the University of Colorado at the Anschutz Medical Campus and the John Wesley Iliff Senior Adjunct Lecturer in Spiritual Care.
where she provides program oversight and teaches spiritual care in an interprofessional graduate program in palliative care.
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Nicholas Collura is working as the first spiritual counselor at Tandigm Health, a health care start-up based in Conshohocken, PA, that supports Primary Care Physicians with resources to keep their patients well and out of the hospital.
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From: Matovu Lawrence
Subject: INSPIRING
Life is truly beyond the “i”
Regine Roche is an MD trained in anesthesiology, pain medicine, and palliative care and currently work at the Hospital of the State University of Haiti, Port-au-Prince.
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Joanna Thyer works as a multi-faith coordinator at a university, and as a coordinator of a pastoral program for People Living with HIV and Aids (PLWHA).
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Additional Offerings by Barry Ashpole
Following is a representative sample of articles, reports, etc., on hospice and palliative care in the prison environment noted over the past five years (2015-2020) in the weekly report Media Watch.
Although a universal public health issue, it is in the United States that most
interest and attention has been afforded the aging and the terminal ill prison population.
This backgrounder begins with twenty-plus articles by way of a broad overview of the issue, followed by additional articles, etc., (in descending order of publication) that offer a national and state-by state overview. This is followed by a short list of articles, etc., on end-of-life care in the prison systems in Canada, the U.K., France, Poland and Australia. Added is a list of additional, selected resources.
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Media Watch
Of particular interest in this week's issue of Media Watch (copy attached):
Lack of consistency in government policy
Palliative care must be a priority for all governments
Reducing barriers to accessing palliative care
Duration of palliative care before death in international routine practice: A systematic review and meta-analysis
Perceptions of palliative care
How views of oncologists and haematologists impacts palliative care referral: A systematic review
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Of particular interest in this week's issue of Media Watch (copy attached):
Canada
Involvement of palliative care in patients requesting medical assistance in dying
Germany
Can migration background be a boundary in palliative care at the end of life?
U.K.
The perspectives of children and young people affected by parental life-limiting illness: An integrative review and thematic synthesis
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Of particular interest in this week's issue of Media Watch (copy attached):
Gaps in hospice and palliative care research
A scoping review of the North American literature
"in the moment"
“Advance” care planning re-envisioned
International transfer of an end-of-life care intervention
The case of the Liverpool Care Pathway for the dying patient
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Of particular interest in this week's issue of Media Watch (copy attached):
France
Home-based palliative care management: What are the useful resources for general practitioners? A qualitative study among GPs in France
Germany
Caregiving adult children’s perceptions of challenges relating to the end of life of their centenarian parents
U.K.
Factors influencing nurse retention within children’s palliative care
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Of particular interest in this week's issue of Media Watch (copy attached):
Palliative Care in Conflict Zones
Addressing obstacles to the inclusion of palliative care in humanitarian health projects: A qualitative study of humanitarian health professionals’ and policymakers’ perceptions
Pediatric Palliative Care
Going against patients’ will? A qualitative study of how palliative healthcare professionals handle competing considerations when children are excluded from parental illness and death
COVID-19
The impact of COVID-19 on the hospice and palliative care workforce
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Of particular interest in this week's issue of Media Watch (copy attached):
Belgium
Implementation of primary palliative care in five Belgian regions: A qualitative study on early identification of palliative care needs by general practitioners
Sweden
The 6S‐model for person‐centred palliative care: A theoretical framework
U.K.
Care of the dying person before and during the COVID-19 pandemic: A quality improvement project
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How to communicate with families living in complete isolation
New Zealand
Gender and palliative care: A call to arms
U.S.
The pitfalls of utilizing “goals-of-care” as a clinical buzz phrase: A case study and proposed solution
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Of particular interest in this week's issue of Media Watch (copy attached):
Canada
A feasibility study of a volunteer navigation program in the palliative context
U.K.
Information sharing challenges in end-of-life care: A qualitative study of patient, family and professional perspectives on the potential of an electronic palliative care co-ordination system
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Of particular interest in this week's issue of Media Watch (copy attached):
Australia
Supportive and palliative care in the age of deferred death: Primary care’s central role
European Innovation Partnership on Active & Healthy Aging
Rethinking palliative care in a public health context: Addressing the needs of persons with non-communicable chronic diseases
U.S.
Ensuring adequate palliative and hospice care during COVID-19 surges
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Of particular interest in this week's issue of Media Watch (copy attached):
Belgium
Are family carers part of the care team providing end-of-life care? A qualitative interview study on the collaboration between family and professional carers
Workforce planning for community-based palliative care specialist teams using operations research
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U.K.
Managing and sharing research data in children’s palliative care: Risks, benefits and imponderables
Patient and public involvement in palliative care research: What works, and why? A qualitative evaluation
In the Lay Press
In pandemic era, the term palliative care is even more scary for some. So specialists want to rename it.
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Of particular interest in this week's issue of Media Watch (copy attached):
Belgium
Palliative care utilisation: Family carers’ behaviours and determinants: A qualitative interview study
Italy
How palliative care professionals deal with predicting life expectancy at the end of life: Predictors and accuracy
U.S.
Will you hear me? Have you heard me? Do you see me? Adding cultural humility to resource allocation and priority setting discussions in the care of African American patients with COVID-19
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From the field of pediatric palliative care, and of particular interest in this week's issue of Media Watch (copy attached):
Canada
Serious illness conversations in pediatrics: A case review
U.S.
Pediatric palliative care when COVID-19 positive adults are dying in a children’s hospital
Diagnosis to death: Family experiences of paediatric heart disease
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Of particular interest in this week's issue of Media Watch (copy attached):
Canada
What are we willing to pay for the quality of death we want?
New Zealand
Palliative care delivery in residential aged care: Bereaved family member experiences of the Supportive Hospice Aged Residential Exchange (SHARE) intervention
Sweden
Toward a consensus on the nature of empathy: A review of reviews
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Of particular interest in this week's issue of Media Watch (copy attached):
Exploring the cost‐effectiveness of advance care planning (by taking a family carer perspective): Findings of an economic modelling study
COVID-19 and hospital palliative care: A service evaluation exploring the symptoms and outcomes of 186 patients and the impact of the pandemic on specialist hospital palliative care
Grief from Covid-19 death: Toll on bereaved family members runs deep, study says
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Of particular interest in this week's issue of Media Watch (copy attached):
Barriers and facilitators to optimal supportive end-of-life palliative care in long-term care facilities: A qualitative descriptive study of community-based and specialist palliative care physicians’ experiences, perceptions and perspectives
Palliative care needs-assessment and measurement tools used in patients with heart failure: A systematic mixed-studies review with narrative synthesis
MVP (Medical situation, Values & Plan): A memorable and useful model for all serious illness conversations
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Of particular interest in this week's issue of Media Watch (copy attached):
Advance care planning vs. advance serious illness preparations and planning
We will all be changed: Palliative care transformation in the time of COVID-19
Social justice and palliative care policy
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Of particular interest in this week's issue of Media Watch (copy attached):
“Palliative pandemic plan”: Triage and symptoms algorithm as a strategy to decrease providers’ exposure, while trying to increase teams availability and guidance for goals of care and symptoms control
Teach me about death
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Of particular interest in this week's issue of Media Watch (copy attached):
A pilot evaluation of the Strengthening a Palliative Approach in Long-Term Care (SPA-LTC) program
Children’s views are not taken into account in accordance with Article 12 of the United Nations Convention on the Rights of the Child in the Family Talk Intervention when a parent is cared for in palliative care
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Of particular interest in this week's issue of Media Watch (copy attached):
What is a good death? A critical discourse policy analysis
Experience of caregivers supporting a patient through voluntarily stopping eating and drinking
The Compassionate Communities Connectors model for end-of-life care: A community and health service partnership in Western Australia
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Of particular interest in this week's issue of Media Watch (copy attached):
Black lives in a pandemic: Implications of systemic injustice for end‐of‐life care
Creating a resilient research program: Lessons learned from a palliative care research lab
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Of particular interest in this week's issue of Media Watch (copy attached):
Increasing advance care planning in the secondary care setting: A quality improvement project
A scoping research literature review to identify contemporary evidence on the incidence, causes, and impacts of end-of-life intra-family conflict
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Of particular interest in this week's issue of Media Watch (copy attached):
Integration of palliative care into COVID-19 pandemic planning
BMJ SUPPORTIVE & PALLIATIVE CARE | Online – 9 June 2020 – The COVID-19 pandemic is expected to surpass the healthcare system’s capacity to provide intensive care to all patients who deteriorate as a result of the disease. This poses a unique challenge to healthcare teams of rationing care during a pandemic when resources are scarce. Healthcare providers will need to acquire new skills in care decision making and effective symptom control for patients who do not receive life-saving measures. In this review, the authors describe some of the important palliative care (PC) considerations that need to be incorporated into COVID-19 pandemic planning. The main aspects to be considered include decision algorithms for rationing care, training on effective symptoms management, alternative delivery methods of PC services such as telemedicine and finally death and bereavement support for surviving family members who are likely to be isolated from their loved one at the moment of death. Full text: https://bit.ly/2YslIRp
Human touch via touchscreen: Rural nurses’ experiential perspectives on telehealth use in pediatric hospice care
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Of particular interest in this week's issue of Media Watch (copy attached):
A review and considerations on palliative care improvements for African Americans with cancer
Outcomes associated with a nurse-driven palliative care screening tool in the intensive care unit
COVID-19
Coronavirus changes how doctors deal with death
Worth Repeating
Palliating a pandemic: “All patients must be cared for”
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