DonateIntersection of Palliative Care and Spiritual Care
Carole Clarke is a full-time Healthcare Chaplain in Aberdeen, Scotland, where she divides her time between the acute hospital and the palliative care unit. Clarke is relatively new to chaplaincy, having been in post just under three years. Prior to her Chaplaincy, Clarke was a freelance music therapist in clinical settings.
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Maria Witjaksono has been working in Palliative Care from 2000 but became a palliative care physician in 2008. She works at the National Cancer Hospital in Jakarta.
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Ayuba Doroh works as a palliative care officer in a non-governmental organization based in Abuja –Nigeria. I have been providing palliative care service to People Living with HIV/AIDS (PLWHA) for the past 10 years now.
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Victoria O. Suberu is a Registered Nurse, who recently graduated from the oncology nursing program in Abuja FCT in Nigeria. She has been working as a registered nurse for 14 years in Nigeria.
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Kresimir Loncar is a specialist in radiotherapy and oncology (clinical oncology) working as a physician on a palliative care team at the University Hospital Center Zagreb and UHC Maribor
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Jessica Seufert has worked as a Hospice Chaplain/Bereavement Coordinator for over twelve years in Denver, Colorado. She is a certified Clinical Chaplain/Pastoral, has a Master's in Psychology, with specializations in Death & Dying and earned an equivalent to a Master's of Divinity (MDiv).
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Meet Claire Oppert, a concert cellist, teacher, and author. She works as an art therapist with people suffering from autism (1997-2003, Centre Adam Shelton, Saint-Denis), with patients with dementia.
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Meet Caroline Tigere, a Palliative Care Nurse Practitioner who works at Lawrence General Hospital. I have been working in palliative care for over 10 years. She helps families establish goals of care and manage symptoms such as pain, shortness of breath, nausea, etc.
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Meet Beatrijs Hofland, a spiritual counselor who works in an institution for elderly care in the south of The Netherlands. Palliative care has been the center of focus and attention. In The Netherlands, you can either work as a general spiritual counselor or as a chaplain with a connection or mission from your own denomination.
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Meet Myrna Koonce, a palliative care chaplain at Maine Medical Center in Portland, Maine. As a member of the interdisciplinary team, she assess and ministers to the spiritual care needs of all adult palliative care patients in the hospital including critical care, cardiac unit, oncology floors, neuro unit, and regular medical-surgical floors. During COVID, her team has served as a consulting service but also is in reserve as a stand-alone CMO primary team, serving all people who are dying in the hospital and cannot be moved elsewhere.
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Meet Dr. Eunice Olusoji, a medical officer involved in Palliative care research and advocacy with the Centre for Palliative care, Nigeria. Se was introduced to palliative care in 2018 and since has trained in the field. She practices palliative care in managing her patients.
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Maria Carmo Colimao has been working at St. Christopher’s Hospice in a community development scheme, Compassionate Neighbour’s, and as a volunteer Social Worker. These experiences enabled her to get her first role as a palliative social worker at Peace Hospice Care. She is in the process of transitioning to St. John’s Hospice in St. John’s Wood.
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Meet Eunice Nusetor, a registered general nurse, who is currently doing her national service at the 37 Military Hospital in Ghana. I work as a bedside nurse with continuous interactions with patients with various health-related conditions and providing quality healthcare such as monitoring patients' conditions, planning of care, and other general nursing responsibilities.
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Meet Kristin Springmeyer a chaplain ordained in the ELCA Lutheran denomination for 27 years. Her responsibilities include spiritual assessments, regular visitation, end-of-life care, collaborating with community faith groups for patient needs, participating in our teams' quality improvement committee and the medical fellowship faculty, and providing education on various spiritual care topics for hospital staff and in the community. Education examples include: Understanding Faith Traditions at End-of-Life, Spiritual Assessment Models, Pediatric Stages of Faith, and Family Spiritual Coping through Miracles.
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Meet Sasa Moslavac, a PMR specialist in the Palliative Care Department of Novi Marof at the General Hospital Varaždin, Croatia. The department has 97 beds and he is responsible for the overall management of palliative patients and a multi-professional team for 20 – 30 patients, depending on the shared workload. His previous experience includes 25 years in spinal cord injury rehabilitation. For the past 10 months he has been working in the palliative care department.
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Mansara Hassan is a Palliative Care Nurse Practitioner in North Texas. She has been a Nurse Practitioner for two years after having worked as a registered nurse for over four years. She was introduced to Palliative Care while completing her graduate program and had the privilege of learning from some of the leading nurse scholars in the field.
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Deborah Wilde has been in full-time healthcare chaplaincy for 14 years now. At University Hospitals of Morecambe Bay, she is the chaplaincy team leader at Furness General Hospital leading a team of sessional chaplains. She also sits on the Rapid Response for sudden and unexpected child death teams and other community ecumenical groups.
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Adiamo Adedayo is a registered public health nurse under the nursing and midwifery council of Nigeria. She has been practicing nursing for about 6 years now.
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Additional Offerings by Barry Ashpole
In the following pages is a representative sample of articles, reports, etc., on hospice and palliative care in the prison environment noted over the past five years (2017-2021) in the weekly report Media Watch.
Although a universal public health issue, it is in the United States that most interest and attention has been afforded the aging and the terminally ill prison population.
This backgrounder begins with a selection of articles by way of a broad overview of the issue, followed by additional articles, etc., (in descending order of publication) that offer a national and (in the U.S.) stateby- state overview. This is followed by a list of articles, etc., from a variety of sources on end-of-life care in the prison systems in Australia, Canada, China, France, Ireland, New Zealand, Poland, Russia, Switzerland and the U.K.
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Media Watch
Of particular interest in this week's issue of Media Watch (copy attached):
Holding hope for patients with serious illness
Not dying alone: The need to democratize hospital visitation policies during COVID-19
The impact of poverty and deprivation at the end of life: A critical review
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Of particular interest in this week's issue of Media Watch (copy attached):
Canada
Enduring physical or mental suffering of people requesting medical assistance in dying
U.K.
Out-of-hours services and end-of-life hospital admissions: A complex intervention systematic review and narrative synthesis
U.S.
Solomon Center for Health Law & Policy and the Center to Advance Palliative Care launch innovative palliative care policy-tracking database
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Of particular interest in this week's issue of Media Watch (copy attached):
Canada
“Reflection and soul searching”: Negotiating nursing identity at the fault lines of palliative care and medical assistance in dying
The Netherlands
Development of the Dutch structure for integrated children’s palliative care
U.S.
Exploring the psychological aspects of palliative care: Lessons learned from an interdisciplinary seminar of experts
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Of particular interest in this week's issue of Media Watch (copy attached):
Australia
Negative media portrayal of palliative care: A content analysis of print media prior to the passage of voluntary assisted dying legislation in Victoria
Canada
Increasing our understanding of non-physical suffering within palliative care: A scoping review
U.K.
Family and healthcare professionals managing medicines for patients with serious and terminal illness at home: A qualitative study
U.S.
Advancing the Economics of Palliative Care: The Value to Individuals and Families, Organizations, and Society
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Of particular interest in this week's issue of Media Watch (copy attached):
Canada
Effect of early palliative care on end-of-life healthcare costs: A population-based, propensity score-matched cohort study
U.K. (Scotland)
Palliative care research promotion in policy and practice: A knowledge exchange process
Publishing Matters
Structural racism and scientific journals – a teachable moment
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Of particular interest in this week's issue of Media Watch (copy attached):
Australia
A national position statement on adult end-of-life care in critical care
Sweden
Dissemination, use, and impact of a community-based, conversational advance care planning intervention: Ripple effects of the Swedish DöBra cards
U.K.
COVID grief has cracked us open: How clinicians respond could reshape attitudes to bereavement
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Of particular interest in this week's issue of Media Watch (copy attached):
Canada
Harnessing new and existing virtual platforms to meet the demand for increased inpatient palliative care services during the COVID-19 pandemic: A 5-key themes literature review of the characteristics and barriers of these evolving technologies
U.S.
Primary care physicians’ perspectives of serious illness conversations at community health centers
Social model hospice home: A concept analysis
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Of particular interest in this week's issue of Media Watch (copy attached):
India
The universality of palliative care philosophy: A case study from India
U.K.
Young adults understanding and readiness to engage with palliative care: Extending the reach of palliative care through a public health approach: A qualitative study
U.S.
New developments in end-of-life teaching for Roman Catholic healthcare: The implications of Samaritanus Bonus (“The Good Samaritan”)
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Of particular interest in this week's issue of Media Watch (copy attached):
Australia
Context and mechanisms that enable implementation of specialist palliative care Needs Rounds in care homes: Results from a qualitative interview study
CanadaMissing in action: Reports of interdisciplinary integration in Canadian palliative care
U.S.Differences between for-profit and non-profit hospice agencies in the U.S. Medicare population
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Of particular interest in this week's issue of Media Watch (copy attached):
Germany
Insights from a community-based palliative care course: A qualitative study
U.K.
Priorities and opportunities for palliative and end-of-life care in U.K. health policies: A national documentary analysis
U.S.
Reimagining the inpatient palliative care consult: Lessons from COVID-19
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Of particular interest in this week's issue of Media Watch (copy attached):
Ireland
A literature review of possible barriers and knowledge gaps of general practitioners in implementing advance care planning in Ireland: Experience from other countries
U.S.
Palliative care in the emergency department: A qualitative study exploring barriers, facilitators, desired clinician qualities, and future directions
Research Matters
Research cooperative groups in pediatric palliative care research
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Of particular interest in this week's issue of Media Watch (copy attached):
Italy
How have case mix, cost and hospital stay of inpatients in the last year of life changed over the past decade? Evidence from Italy
U.K.
Video hospice consultation in COVID-19: Professional and patient evaluations
U.S.
Specialty palliative care in COVID-19: Early experiences from the Palliative Care Quality Collaborative
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Of particular interest in this week's issue of Media Watch (copy attached):
Canada
Decision-making and poor prognosis: When death is silenced by action
Ireland
“Don’t forget the children”: A qualitative study when a parent is at end of life from cancer
U.K.
Experiences of fathers of children with a life-limiting condition: A systematic review and qualitative synthesis
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Of particular interest in this week's issue of Media Watch (copy attached):
Canada
Intensity of outpatient physician care in the last year of life: A population-based retrospective descriptive study
Switzerland
Public perception of palliative care: A survey of the general population
U.S.
Actual and missed opportunities for end-of-life care discussions with oncology patients: A qualitative study
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Of particular interest in this week's issue of Media Watch (copy attached):
The Netherlands
Frames and counter-frames giving meaning to palliative care and euthanasia in The Netherlands
U.K.
Are public health measures and individualised care compatible in the face of a pandemic? A national observational study of bereaved relatives’ experiences during the COVID-19 pandemic
U.S.
Most U.S. adults may lack knowledge about palliative care
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Of particular interest in this week's issue of Media Watch (copy attached):
Canada
Multi-disciplinary supportive end-of-life care in long-term care: An integrative approach to improving end of life
U.K.
Modelling palliative and end-of-life resource requirements during COVID-19: Implications for quality care
Research Matters
Economic evaluation of palliative care interventions: A review of the evolution of methods from 2011 to 2019
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Of particular interest in this week's issue of Media Watch (copy attached):
International Neuropalliative Care Society
New hope for advancing neuropalliative care
Philippines
Responding to the fear of dying alone during COVID-19 pandemic
U.K.
Priorities and opportunities for palliative and end-of-life care in U.K. health policies: A national documentary analysis
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Of particular interest in this week's issue of Media Watch (copy attached):
Australia
50 Years of advance care planning: What do we call success?
Sweden
Continuums of change in a competence-building initiative addressing end-of-life communication in Swedish elder care
U.K.
Cicely Saunders, “total pain” and emotional evidence at the end of life
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Of particular interest in this week's issue of Media Watch (copy attached):
Germany
Diversity in representations and voices of terminally ill people in end-of-life documentaries
U.S.
Integration of palliative care into all serious illness care as a human right
Research Matters
Stakeholder-engaged process for refining the design of a clinical trial in home hospice
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Of particular interest in this week's issue of Media Watch (copy attached):
Australia
Evaluation of a commissioned end-of-life care service in Australian aged care facilities
Norway
Death Café, Bauman and striving for human connection in “liquid times”
U.S.
The role of advance care planning in cancer patient and caregiver grief resolution: Helpful or harmful?
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Of particular interest in this week's issue of Media Watch (copy attached):
Canada
Activating patients and families to improve palliative care: The waiting room revolution
U.K
Models will only get us so far: Planning for place of care and death
Research Matters
The power of specialty palliative care: Moving towards a systems perspective
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Of particular interest in this week's issue of Media Watch (copy attached):
Australia
Examining the role of specialist palliative care in geriatric care to inform collaborations: A survey on the knowledge, practice and attitudes of geriatricians in providing palliative care
Canada
The association between varying levels of palliative care involvement on costs during terminal hospitalizations in Canada from 2012 to 2015
Hospice care providers' experiences of grappling with medical assistance in dying in a hospice setting: A qualitative descriptive study
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Of particular interest in this week's issue of Media Watch (copy attached):
Italy
The hospice as a learning space: A death education intervention with a group of adolescents
Norway
Palliative care in general practice: A questionnaire study on the GPs role and guideline implementation in Norway
U.K.
Palliative care at home “compromised” during pandemic, Marie Curie survey finds
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Of particular interest in this week's issue of Media Watch (copy attached):
Europe
European Resuscitation Council Guidelines 2021: Ethics of resuscitation and end-of-life decisions
U.S.
“Don’t talk to them about goals-of-care”: Understanding disparities in advance care planning
Research Matters
Facebook recruitment for children with advanced cancer and their parents: Lessons from a web-based pediatric palliative intervention study
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Of particular interest in this week's issue of Media Watch (copy attached):
Canada
Hospital-based acute care in the last 30 days of life among patients with chronic disease that received early, late or no specialist palliative care: A retrospective cohort study of eight chronic disease groups
U.K.
Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey…
Research Matters
Opportunities for public involvement in big data research in palliative and end-of-life care
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Of particular interest in this week's issue of Media Watch (copy attached):
Australia
Public knowledge, preferences and experiences about medical substitute decision-making: A national cross-sectional survey
Ireland
Examining public knowledge, attitudes and perceptions towards palliative care: A mixed method sequential study
U.K.
A critical realist evaluation of advance care planning in care homes
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Of particular interest in this week's issue of Media Watch (copy attached):
Australia
A systematic review of classifications systems to determine complexity of patient care needs in palliative care
Germany
Ten things to consider when implementing rationing guidelines during a pandemic
U.K.
Incompatible: End-of-life care and health economics
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Of particular interest in this week's issue of Media Watch (copy attached):
Canada
A national collaborative to spread and scale paramedics providing palliative care in Canada: Breaking down silos is essential to success
Spain
Effectiveness of a family-caregiver training program in home-based pediatric palliative care
U.K. & Ireland
“A silent epidemic of grief”: A survey of bereavement care provision in the U.K. and Ireland during the COVID-19 pandemic
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Of particular interest in this week's issue of Media Watch (copy attached):
Denmark
Citizens appreciate talking about death and learning end-of-life care: A mixed-methods study on views and experiences of 5,469 Last Aid Course participants
Physicians’ views on the usefulness and feasibility of identifying and disclosing patients’ last phase of life: A focus group study
U.S.
Conversing with high-risk patients to determine serious illness goals and values in the time of COVID-19
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Of particular interest in this week's issue of Media Watch (copy attached):
Australia
Harnessing social support for bereavement now and beyond the COVID-19 pandemic
U.K. (England)
Constructing a new role for family carers and volunteers providing care towards the end of life: An action research approach exploring a new model of hospice care
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Of particular interest in this week's issue of Media Watch (copy attached):
Canada
Palliative care in Toronto during the COVID-19 pandemic
Europe
Responding to the new International Classification of Diseases-11 prolonged grief disorder during the COVID-19 pandemic: A new bereavement network and three-tiered model of care
U.S.
A vital layer of support: One safety net hospital’s palliative care response to the pandemic
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Of particular interest in this week's issue of Media Watch (copy attached):
Palliative care in low-income and middle-income countries
“Flattening” one curve: What about “raising the line” on the other? COVID-19 and palliative care in low-income and middle-income countries
U.K. (Scotland)
How many people will need palliative care in Scotland by 2040? A mixed-method study of projected palliative care need and recommendations for service delivery
Europe
Palliative care competencies for geriatricians across Europe: A Delphi consensus study
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Of particular interest in this week's issue of Media Watch (copy attached):
Spain
Palliative care professionals’ inner lives: Cross-cultural application of the awareness model of self-care
U.K. (England & Wales)
Palliative care: Experts call for major reforms as pandemic accelerates demand by 20 years
BRITISH MEDICAL JOURNAL | Online – 26 January 2021 – Experts at a leading charity have made an urgent call for reforms to the U.K.’s palliative care system, as demand during the
U.S.
PSST! I need help! Development of a peer support program for clinicians having serious illness conversations during COVID-19
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Of particular interest in this week's issue of Media Watch (copy attached):
Australia
Validation of the responding to urgency of need in palliative care (RUN-PC) triage tool
Denmark
Maintaining control: A qualitative study of being a patient in need of specialized palliative care during the COVID-19 pandemic
U.K. (England)
A national survey of ambulance paramedics on the identification of patients with end-of-life care needs
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